Published March 10th, 2017
It’s been a long time since I wrote anything new about my condition.
The reason is not because nothing new has happened. It’s because the new events don’t sit well with the happy ending of my old story. That old story was just about perfect. It was complete. It was inspiring.
This new chapter of my life, well, I just don’t know what it is yet. I’m not sure how it fits. I’m not sure I like it. I’m not sure you’ll like it. It’s confusing.
Back in 2013 I spoke at events all over Australia. I even went to New Zealand for the first time and spoke in the National Museum in Wellington, in a beautiful hall adorned with Maori carvings. The nurses in attendance gave me a standing ovation. Then they formed an orderly queue to put their arms around me and take selfies. I felt like the John Mayer of inflammatory bowel disease.